Save Sight Now

A movement

Dedicated to curing Usher Syndrome related blindness

Those with Usher Syndrome Type 1 have already lost their hearing and we are committed to making sure they also dont lose their vision.

With the approval of Luxturna - the first FDA approved retinal gene therapy for a genetic disease - and trials currently under way for USH2A, inherited retinal disease treatments are being discovered, tested, proven and manufactured today. We want to make certain Usher1 treatments aren’t far behind.

We’re looking at every promising strategy that has the potential to slow, stop or reverse Usher related RP symptoms - this can be gene specific or not. We’re finding and identifying leading research team(s) and ensuring their research gets to clinical trials.