Dedicated to Curing Childhood Blindness
Thousands of children not only lose their hearing, but also lose their eyesight due to Usher Syndrome Type 1B. Save Sight Now is committed to helping our most vulnerable Usher Syndrome patients - our kids. They’ve already lost their hearing, we’re trying to ensure they also dont lose their vision.
With the approval of Luxturna - the first FDA approved retinal gene therapy for a genetic disease - and trials currently under way for USH2A, inherited retinal disease treatments are being discovered, tested, proven and manufactured today. We want to make certain Usher1 treatments aren’t far behind.
We’re looking at every promising strategy that has the potential to slow, stop or reverse Usher related RP symptoms - this can be gene specific or not. We’re finding and identifying leading research team(s) and ensuring their research gets to clinical trials, but we need your help to make this a reality.