Justin Porcano Justin Porcano

Our Newly Funded 2024 Research Projects!

We are thrilled to announce the recipients of our 2024 Usher Syndrome Research Grant Award. Funding exceptional research teams that bring us closer to finding a treatment to stop vision loss caused by Usher syndrome type 1B is at the core of our mission.

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Justin Porcano Justin Porcano

Gift of Vision 2024, 5th Anniversary Gala

On Thursday, November 14th we had the absolute pleasure of hosting the 5th Anniversary Gift of Vision Gala. We are still basking in the afterglow of an incredibly successful event surrounded by the most loving and generous community of supporters.

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Justin Porcano Justin Porcano

Important UNIRARE Study, Now Enrolling

If you, or anyone you know, is affected by USH1B, we highly encourage participation through your closest enrolling clinic. The insights gained from UNI-RARE are crucial for moving potential treatments into clinical trials and achieving FDA approval.

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