We’re heading back to Peacock Gap for our third annual Bay Links golf tournament. Registration includes 18 holes with green fees and cart, a box lunch, and a few on-course games and prizes mixed in. 

Tee times start at 12:00pm from the first hole, with groups going out every 8 minutes. Scramble format — teams play best ball.

It’s a great group, a good course, and a chance to support life-changing research for people with Usher syndrome type 1 B who are losing their vision.

Save Sight Now recently hosted its second USH1B Translational Research Workshop at ARVO 2026, bringing together leading researchers, clinicians, scientific advisors, and collaborators focused on advancing treatments for Usher syndrome type 1B. Held during one of the world’s leading inherited retinal disease conferences, the workshop focused on accelerating translational research, refining therapeutic priorities, and supporting emerging approaches including gene editing, whole-gene delivery, small molecule therapies, and patient-derived testing models for USH1B.

A New Chapter in the Fight to Save Sight Now. After six years of partnering with the Foundation Fighting Blindness as our fiscal sponsor, Save Sight Now is now an independent 501(c)(3) nonprofit. And we are kicking off this new chapter with a $250,000 Matching Jumpstart Campaign!

We are thrilled to announce the recipients of our 2024 Usher Syndrome Research Grant Award. Funding exceptional research teams that bring us closer to finding a treatment to stop vision loss caused by Usher syndrome type 1B is at the core of our mission.

On Thursday, November 14th we had the absolute pleasure of hosting the 5th Anniversary Gift of Vision Gala. We are still basking in the afterglow of an incredibly successful event surrounded by the most loving and generous community of supporters.

If you, or anyone you know, is affected by USH1B, we highly encourage participation through your closest enrolling clinic. The insights gained from UNI-RARE are crucial for moving potential treatments into clinical trials and achieving FDA approval.

Thank you, CBS San Francisco/Bay Area, for sharing our story and helping raise awareness for Usher syndrome.