Save Sight Now is an independent nonprofit. And we have a $250,000 Matching Campaign!
A New Chapter in the Fight to Save Sight Now
After six years of partnering with the Foundation Fighting Blindness as our fiscal sponsor, Save Sight Now is now an independent 501(c)(3) nonprofit.
We’re grateful to the FFB for their early support and partnership. Together, we’ve funded research that has built the foundation for future USH1B treatments. But the true driving force behind Save Sight Now’s progress has been you - our donor community, families, and supporters who have fueled this work every step of the way. Because of your belief and commitment to our mission, together we’ve raised over $2.4 million and funded seven high-impact research projects aimed at stopping vision loss caused by Usher syndrome type 1B. We’ll continue to collaborate with the FFB on select initiatives while gaining the speed, flexibility, and autonomy to scale our efforts and respond quickly to emerging opportunities.
The $250,000 Jumpstart Campaign
We’re launching this next chapter with a major giving opportunity. An anonymous donor has pledged to match every donation - up to $250,000 - made before December 31! That means every dollar you give will go twice as far to fund critical research and accelerate treatments for children and young adults losing their vision to USH1B.
While generous, this match is just a fraction of what it will take to bring therapies into clinical trials - research and trials require tens of millions of dollars. That’s why your matched gift today is so important. Thank you for standing with us as we launch this new chapter - your support accelerates our mission to find life-changing treatments.
Note: This match applies to all donations made before year-end, except gifts made during our November Gift of Vision Gala, which will have its own match opportunity.
Make your gift today,
and help us jumpstart $250,000 in matched funding!
What This Means Going Forward
Our mission stays the same:
We remain focused on funding the most promising research - projects with a clear path to clinical trials and the greatest potential to accelerate treatments for children and young adults with USH1B. Our mission centers on speed and scientific rigor, because we don’t have time to waste. We’re committed to making sure no critical opportunity sits idle for lack of funding - because every day without progress is vision we can’t get back.
For our donors:
Not much changes - except that your support now goes directly to Save Sight Now and continues to fund high-priority USH1B research. If you’re a monthly donor, please cancel your existing gift to the Foundation Fighting Blindness and re-enroll HERE. If you’re not yet a recurring donor, we hope you’ll consider joining us - monthly support is essential to sustaining research progress. If you give through a Donor-Advised Fund (DAF) or plan to request a matching gift from your employer, please note that Save Sight Now is a 501(c)(3) tax-exempt organization and can now except DAF's and matching employee donations. Our EIN is 33-2281804. You’ll also notice our website and donation platform have been updated to better support this next phase of growth.
For researchers:
We’re now funding projects directly. While we’ll maintain an annual grant cycle, we’ve built in the flexibility to support promising work throughout the year - so time-sensitive opportunities don’t get left behind. We’ve also established a growing scientific advisory board to ensure our funding decisions are strategic, transparent, and mission-aligned. For research grant submission inquiries, please contact: justin@savesightnow.org
This next chapter is about moving faster and staying focused on our goal: accelerating promising research and treatments for children and young adults who are losing their vision to Usher syndrome type 1B. Thank you for being part of our mission and for continuing to support this life-changing work.